NF 1 and 2( Neurofibromatosis)

I just want to see how many people have it on here. Or their family has it.. I got it when, i was 12 but I don't have that much. I tiny ones on my back And other places.. And its hard cause it can form into cancer. I'm afraid that I might die oneday from it. I also have café au lait spots they look like a coffee cream color.. I got them when I was 4 years old.. And I have them all over my body . I mean everywhere