baby boy will need open heart surgery ๐Ÿ’”

Rachel ๐ŸŒบ ๐Ÿ’™๐Ÿ’— โ€ข Mama to 4 year old twins ๐Ÿ’™ ๐Ÿ’–
Had our scan at children's and baby boy has complex congenital heart disease and will require open heart surgery right after birth. We are both devastated/terrified for him, and also relieved to finally have some information and a "plan" in place. If things progress as they are the next 17 weeks, his odds are really good and can live a totally normal life (with constant monitoring by cardiologist and another surgery before kindergarten). 
Question is: has anyone dealt with a healing child after birth? Just curious how your schedules were different, co-sleeping arrangements, etc. I know we'll be listening to him for the most part, and make it up as we go along, but any advice is appreciated. Baby girl looks great so fingers crossed I carry them to 37+ and she needs no NICU time so we can be with him. I know he's a little fighter!!!

Glow Resources

Letโ€™s Glow

Glow is here for you on your path to pregnancy

Glow helps you navigate your fertility journey with smart tools, personalized insights, and guidance from medical experts who understand what matters most.

25+ million

Users

4.8 stars

200k+ app ratings

20+

Medical advisors