Caudal Regression Syndrome

Anyone on here have themselves or have a child with CRS? My daughter is missing S1 and down so she is able to walk without assistance but I’m having trouble potty training her. Her urologist has told me not to worry about potty training her right now (she is 4 years old). She gets upset when I put a diaper on her. She tells me all the time that she doesn’t want to put a diaper on because she wants to sit on the toilet but when I put her on it, she doesn’t use it. I was just wondering about someone else’s experience and if they have successfully potty trained. What is your advice?

Just want to add that she also has Hydrocephalus. Hydro can affect brain development. She doesn’t really communicate that much. She doesn’t tell me when she needs to use the bathroom or that she can even feel when she needs to go or that she is going.