Uterine cancer at 33

Ana

Well… as the saying goes “you don’t know what worse luck your bad luck has saved you from”. On the one hand, getting my grade 1 uterine cancer diagnosis while we are trying to conceive is utterly devastating, confusing and scary wondering why my body would do this to itself, on the other hand I’m glad it was caught early. Here’s my story: I had been having cervical cancer screening for 7 years following an irregular pap. after doing an unnecessary LEEP 4 years ago, my sex drive was ruined and sex hurt after that. I just never felt like myself again, I also gained weight. Things started to fall apart. Thankfully my husband was there for me throughout all of it. Then post LEEP im on my period during one of the paps and the result comes back utterly confusing - high grade dysplasia - which is unusual n someone post leep. Well now I wonder if the blood from the uterus was what was captured in that sample, hence giving that result but for years it was brushed off as an anomaly as other paps after were ok. For years an HPV DNA test was not performed so for years I had to just wait to not conceive with my husband until I got a normal result. Finally last year I got a negative HPV DNA test for the kinds that cause cancer so I said ok I must be fine. But the bleeding got weirder the missed periods, etc. (LEEPs can cause missed periods because the cervix is more narrow, etc. and missed periods are a risk factor for uterine cancer because the lining gets thick and doesn’t clear properly). So flash forward to my luck a couple weeks ago - I told the nurse look my mom had uterine cancer and I’ve been having these issues for a while (which I had raised before and was told my painful sex was in my head) and she helped me advocate to the doctor to actually do a uterine biopsy. The doctor said “look if you have uterine cancer, go buy a lottery 649 ticket because that’s how rare it will be”. Even my own mom was shocked to hear at 33 that I was doing this and thought I was nuts. Well lo and behold, I have uterine cancer and my life is saved and pending Tuesday I may just be able to freeze some eggs before my hysterectomy (I’ve emailed every good clinic out there). Had this gone on for any longer I would be dead because no one ever would have done this biopsy. I was in the hospital a week after my c-shot in 2021 because of the worse uterine pain in my life and sent home after the uterine biopsy just showed myomas/fibroids. At no point did anyone offer a uterine biopsy to someone who is 33. Ladies - let this be a lesson - please if you aren’t getting periods regularly, even if you’re young, demand a uterine biopsy. It could just save your life.