Young kids and I have a chronic illness

I'm exhausted. My condition is pretty bad health wise. My doctor says nothing really can be done for me at this point but my whole body and my heart are affected. It's recommended I get a pain medication pump but in my state my doctor can't do it so we would have to move out of state. We've looked at treatments in other countries but it's too expensive and not much guarantee. But we don't have 100k laying around. Meaning I'm not functioning well health wise. We have no help from family. My prognosis is I will be fully handicapped in a wheelchair at some point and my limbs will be of very little use to me and I will need a pace maker. There's no timeline of when I can get worse I have been wheelchair bound before though.

My husband works around 55 hour weeks and that leaves me home with the kids. He can control his work hours but he likes his schedule.

My complaint is I am ill and I do everything for everyone. I'm the last to bed and up with the baby at night and first one up at 5 am in the morning making breakfast and seeing our oldest off to school. I do all the kids sports, doctor appointments, schedules, laundry, dishes cooking, cleaning, all pet related care. I legit am burned out. I don't get rest even on weekends.

Tonight I exploded verbally on my husband I didn't yell but he did. He brought home dinner for us and went outside to eat. Leaving me with all our kids bedtime laundry pet cleanup and putting away diaper boxes order and dishes. I already had the kids bathed and in pajamas and they pooped so had to change them again.

I snapped at my husband for sitting in tranquility when I haven't had a second to myself since 5 am.

I'm expected to be a stay at home mom and wife and I'm ill. I'm really ill and I'm getting worse because I'm neglecting myself. I'm resenting my husband. I don't understand why he can't get up a half an hour earlier every day to help me in the mornings and then he could be home a half an hour earlier to help me get the kids to bed at night.

My husband is tired of me complaining about fairness and how he is tired too.

My husband basically tells me all the time how hard marriage is. I'm fearful he will leave me if I demand things change. I feel like I'm solo parenting. I nag. I'm exhausted. If I ask him to do something he doesn't do I have to follow up or just do it. He doesn't willing look around and see things need to be done he doesn't watch a clock or know basic tasks. He doesn't know how to pack lunches, pick out clothes for the next day, he doesn't know what the kids need in backpacks, he doesn't know routines.

It's 8:30 at night and I just ate dinner but I have been running around since 5 am. For a normal person that is a long day. My husband doesn't see this isn't working for us anymore. I don't know what to do.