Home / Community / High Risk Pregnancies

Looking for comrades..

Has anyone else been seeing genetics for genetic screening complications? Looking for support. We found out on Monday that our integrated prenatal screen was positive at a risk of 1 in 2 for DS. We worry that if it isn't DS, what could be causing such abnormal biomarkers. We are strongly considering ending the pregnancy if a major anomaly is identified (for a number of reasons.. It is a heart and gut wrenching thing to have to consider. but please, I am only saying so to avoid comments and encouragement about life with a child with special needs, which we aren't finding helpful right now..)

My husband and I have spent the past few days in a haze of grief and worry. I know that very often the IPS screen is a false positive but I work in obstetric care myself and have never seen a 1:2 and I feel the risk is quite a lot higher that most positive screens... Tomorrow is our first genetics appt. I already know we will opt for an amnio. All of the waiting has been awful...

Today especially I have been feeling very lonely. I see all these rosy pregnant women moving forward with their uncomplicated pregnancies. Even though it was just 3 days ago that I was one of these women, I already miss my biggest worry being about how I would handle those early weeks as a new mom.. And now I feel like a shell, dry lips and big black circles under my eyes from a screen that doesn't feel like a screen when the result is that stark.

Wondering if there is anyone else in this boat and can share their advice or has a story of a woman with 1 in 2 risk..

Comment