Diagnosis. Eventually, if he doesn’t outgrow it,l by age 2, he will need an ETV surgery. Mommas, watch your babies head growth. While most of the time it’s benign, it could causes issues later on in life if not treated properly while they are children. Our baby looks completely normal except with a larger than normal head. He was in 97% percentile head growth. Our pediatrician has seen many cases where children don’t get diagnosed until later and are lucky! Be your babies advocates when something doesn’t feel right.

For the moms who have asked what prompted our concern: our wonderful pediatrician. He was very proactive about “ruling” things out. I have never met a doctor who devotes so much into children like our doctor. We got a second opinion from a pediatrician at another office who claim “oh it’s fine. Some babies just have large heads. Mom and dad have big heads.” But once you start googling—it makes you worry about not getting those test done (in our case an ultrasound and MRI). This time, I am glad I went with the “just to make sure” aspect. Our baby is developing so great (reaches some milestones early) and has no symptoms that this could have gone undiagnosed if it wasn’t for our pediatrician taking that precautionary leap and saying “hey we’ll do this, I except nothing abnormal. But I’d hate myself if I didn’t catch it.” For some babies, they simply outgrow this. Some babies need immediate intervention. Our son will be monitored in development, speed of head growth, and growth aspects overall. We are hopeful, but it’s a refresher for us moms to go with our gut, even if it’s just to be safe.

Added for more info: he is not disproportionately distribution for weight, height and head circumference. When I say he you’d never be able to tell except for his head growth being in the 97% percentile, it would have gone undetected. That was the only “concern”-head growth. Our second opinion made me feel better; it’s genetics. But then I read stories of it happening in the most healthiest of babies. That triggered me to go ahead with the ultrasound and then MRI. I wasn’t saying an MRI is benign. But rather that that Hydrocephalus can be benign depending on what the neurosurgeon determines after studying your tests, and child.. According to our ped, he is above the charts in weight and height, but the concern was the head growth. If you have any concerns, I’d definitely bring them up with your pediatrician! They’ll know the best course of action; or if it even warrants any action! 💚