sad news 21weeks+5
My daughter has been diagnosed with arteriosus truncus and a leaking valve which is treatable. But there's a 30/40% of di George's syndrome which we gave to wait 15 days for the diagnosis of, the fetal consultant is thinking termination if positive for di George's 🥀 if just heart defect she's got 85% chance of surviving first surgery so that's good. I just feel that I'm going mad I can't cope she's kicking away inside me and it's killing me I can't stay sane for 15 days waiting I'm so shocked everything we were told was so bad with di George's syndrome the worst outcome as she won't have any quality of life 😪. Does anyone know of any helpline in uk ? 24hr I only just hanging on x 😩😔😞🥀
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