Help?
Fort Riley Kansas- IACH Hospital
My 21 month old son was just diagnosed with Encephalomalacia. According to the pediatric neurologist he’s been seeing the damage is equivalent to a child having a stroke. However the type of injury is Hypoxic/Anoxic meaning his brain had been deprived of blood and oxygen. She can also tell (patient history and the appearance of the damaged brain) that it’s an old scar and happened around the time of birth. Here’s wheee things get funky- when my son was born I had preeclampsia (was not given magnesium, only saline via IV) anyway- I’m entirely unsure what happened but around midnight the night before he was delivered doctors had come in frantically and told me to get on my hands and knees in the bed and put oxygen on me- they didn’t tell me why and they just kept telling me to breathe. 3 hours later (no one had talked to me what was happening this whole time mind thee and I had no support person) they called for a STAT csection, again wouldn’t tell me why- and when they got him out he wasn’t crying- I found out only from our discharge papers that he was resuscitated and had an APGAR of 3. He was born at 3:27 and thankfully the anesthesia lady had taken photos- he was completely limp and blue/purple I just remember asking over and over again why he wasn’t crying and no one would tell me anything. But to hear he now has lasting brain damage has me wondering if there’s a malpractice case? Isn’t it standard of care to urine screen during prenatal visits? I repeatedly voiced concerns of preeclampsia since my bp was consistently high and my swelling was out of control (gaining 5-7 lbs a week at the end) and why wasn’t I told what was going on with my baby?
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