šŸ”“UPDATE: What are the chances I could have a brain tumor??

I’m seeing my primary tomorrow to get a referral to my old neurologist… I used to see him 3 years ago but they stopped taking my insurance

It’s a long story but basically I have had chronic migraines. Since I was 3 years old

I’ve done a bunch of MRI’s over the years just to make sure it’s JUST migraines and they always come back normal

Over the past 8-12 months however, my migraines have completely changed. They went from lasting MAYBE 3-7 days to now lasting 30+ days with no break… I’m also experiencing a ton of pressure in my head that I never used to have

Like it’s to the point where sometimes the pressure is so bad that once it finally stops, my head jerks back because it was like I was trying to hold my head up the whole time… the last time it happened it literally felt like my head was split in half and the right side was being pressed down lower than the left side

I have a lot of new symptoms because of my migraines but up until googling I just assumed they were from my migraines or just cuz im 24 and getting older

For example my memory is getting super bad…. I called my fiancĆ© when I was leaving work and told him I was going to go to my parents house which is literally a minute tops down the street from my work…. Hung up, started driving, and didn’t realize I forgot to go there till I got 10 min down the road and made it to the towns gas station… I was shocked!!! Like i literally JUST said I was going there, hung up, and forgot

I had no idea memory loss was a sign until I googled it.

I wasn’t worried until on Sunday I was telling my mom what im going to tell the dr and she asked where the pressure is.. I told her usually on only one side of my head at a time (primarily the right side) and she didn’t say anything but she had a look on her face like she was worried which is what made me start googling what the pressure could be

The last time I got an mri was 2017 so I suppose things could have changed in the past 5 years but is it likely??? Like how common is this??

Symptoms:

Change in migraine pattern (weeks longer)

Used to be able to take aleve and it would knock it out.. now even my prescription medicine doesn’t help

Been getting lightheaded and dizzy if I move too fast

Difficulty reading/ speaking (this was a symptom of my regular migraines already so there’s no way of knowing if it’s from that or something else)

Balance issues but assumed up until now it was a long term side effect of taking gabapentin

Vision problems (I keep getting blind spots in my peripheral when I get a migraine which is new for me)

Memory loss

Idk I can probably list more but I’m starting to freak myself out….. I’m praying this is all just my regular migraines getting worse now that I’m getting older.. I’m so stressed honestly, cuz my primary doesn’t listen to me anyways so I feel like it’s pointless to go but it’s the only way to see my old neurologist

Update: I’m a bit frustrated

I took my mom with me to the doctor so that if my primary got off track (happens often) or wouldn’t listen to me then I’d have someone there to advocate for me… that ended up not happening

My primary asked me to start listing my symptoms because she didn’t believe me that my migraines are lasting as long as they are… so I explained they are on one side of my head.. usually the temple to start but move around over time.. they’re a pounding/debilitating pain, I’m sensitive to light, sound, I get nauseous, pass out, can’t read, when I speak it’s just gibberish etc… pretty text book

I then tried to explain all the NEW things happening.. memory loss, intense pressure etc…. But as soon as the words ā€œpressureā€ came out of my mouth she closed her laptop and goes ā€œwell you don’t have migraines then, you have Tension headachesā€ā€¦ and I cut her off before she could say anymore and was like ā€œno, that’s not what I’m talking about! This is completely different!ā€ And before I could even say that the pressure only lasts 30 seconds and that it happens even when my head doesn’t hurt, she brushed me off and wouldn’t let me finish anything else I needed to tell her… I immediately started crying and my mom just sat there and didn’t say anything. Like I’m not expecting her to tell the doctor to shut the fuck up but I’ve been struggling for so damn long I JUST WANT HELP 😭😭😭

Also when she took my pulse and what not, my blood oxygen level was apparently really low so instead of asking if I was anxious (I was!!) she rudely accused me of holding my breath 😭😭

The doctors appointment finished with her telling me my migraines are a result of my weight even though I’ve been diagnosed with chronic migraines since I was 11 and have had chronic migraines since I was 3

Yes, I’m overweight, but I’ve lost 30 lbs and clearly nothing has changed.

Worst part of all.. even though my old neurologist takes my insurance.. he’s not in my network anymore 😭😭😭😭

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