Infantile spasm...? anyone have any experience with this? I’m basically freaking out. We have an EEG scheduled, but I hate watching my poor little baby go through this with no way to comfort her

Elise

Hey ladies! I know one or two of you wanted updates. LO has an EEG that came back normal. I’m not 100% convinced because she didn’t have an episode during it nor did the tech seem to know what he was doing with an infant. BUT it gave us a little peace of mind. The frequency of episodes has decreased, but she still has jerky spasm type movements when falling asleep and just after waking up.

I plan to keep and eye on it (obviously), but I’m thinking sadly that the jerky movements were more from stress and pain due to reflux that we are now aggressively treating.

That said if anyone has reflux tips, lay em on me! ❤️